Health-e-Child and ECHILD

The Health-e-Child project aims to integrate biomedical data to improve healthcare for children. Through a customised platform, this project will support personalised and preventative medicine. The initial project focus is on paediatric conditions including arthritis and brain tumours. Data from the database will also be used to support large-scale biomedical research.

Project overview

The Health-e-Child project aims to build an integrated biomedical knowledge repository and interoperability platform. This will enable clinicians to access, enhance and analyse integrated biomedical information in a multimodal environment. The first phase of the project will focus on paediatric diseases, including heart conditions and brain tumours.

This project is being undertaken in partnership with the National Health Service Digital and the Department for Education. The goal of the project is to improve the quality of health and education services for children in England, including those from vulnerable groups. The project will also focus on perinatal depression screening and childhood vaccinations.

Data model

The Health-e-Child data model combines descriptive metadata with system semantics. This model is designed to be flexible, reactive to user queries, and rich to support integration and analysis. It is illustrated in Figure 2. Meta-data enhances the quality and reusability of data, improves system interaction, and facilitates analysis and maintenance.

The Health-e-Child project aims to provide a platform to integrate biomedical information from various sources. Ultimately, it will support the development of personalised medicine, preventative medicine, and large-scale biomedical research for children. Initially, it will focus on paediatric heart conditions, but is expected to eventually cover a wide range of diseases.

The data model is structured to accommodate two types of index clients: mothers and fathers. It also includes attributes related to the mother, including her first and last name, age, gravidity, and blood group. It also includes her physical address and mobile phone number. The model also includes the expected delivery date.

Data storage

The Health-e-Child project is building an open platform for the storage and integration of complex biomedical information. It is intended to facilitate personalised medicine, preventative medicine, and large-scale biomedical research. The project initially aims to collect data on paediatric heart conditions, brain tumours, and arthritis.

The data model of Health-e-Child is designed to support user queries and is rich enough to support integration. It includes a set of meta-data that improves system interaction, data quality, and support for analysis and maintenance. A typical Health-e-Child data model is described in Figure 2.

Data integration

The Health-e-Child project aims to develop a platform that will integrate biomedical information from traditional and emerging sources for the treatment and prevention of childhood diseases. The data collected by the project will be used for large-scale biomedical research and personalised medicine. The initial focus of the project will be on the areas of paediatric heart conditions, brain tumours and arthritis.

The CHARM information system will bring together child health information from several programs, but will not replace existing UDOH databases. CHARM will act as an electronic broker, dispatcher, conflict manager, and integration policy enforcer. The participating programs will maintain ownership of their data and will only share parts of it with CHARM.

Data exploitation

The ECHILD team is conducting strategic research using a large linked dataset of two million children. This research is designed to improve the quality and usability of data and produce resources and metadata. It is also intended to generate policy relevant exemplar research. The ECHILD team is working on a number of important questions pertaining to health data.